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When Rosalyn and Justin from the United States found out that their first child Lia was born with Usher Syndrome, a rare genetic disorder resulting in hearing and vision loss, they were [...]

There are some personalities you’ll never forget, like Charlie’s. Usher Syndrome, which causes deafness and blindness, doesn’t stop talented 10-year-old Charlie playing music, sport and more!

Carolien shares her experience of her son Jackson being diagnosed with Usher Syndrome, a rare syndrome which can cause profound deafness & blindness.