When Rosalyn and Justin from the United States found out that their first child Lia was born with Usher Syndrome, a rare genetic disorder resulting in hearing and vision loss, they were devastated. While bilateral MED-EL cochlear implants enable her to hear the world around her and to communicate, Lia’s parents want to do everything
Two weeks ago we introduced you to 10-year-old Charlie, who talked about his passion for singing and playing music, including violin, guitar, and piano. Charlie became profoundly deaf by the time he was three, and received cochlear implants soon afterwards. Last year, Charlie’s eyesight began to deteriorate and he was diagnosed with a condition which
Carolien talks about her experience of her son Jackson being diagnosed with Usher Syndrome, a rare syndrome which causes profound deafness and blindness. ———- So there’re four of us. Willem is my husband and we go way back. We grew up together in a small village in The Netherlands, close to Belgium. We got married in
