{"id":46041,"date":"2020-08-18T11:50:44","date_gmt":"2020-08-18T11:50:44","guid":{"rendered":"https:\/\/blog.medel.com\/uncategorized-tr\/koklear-anomalisi-ince-sinir-olan-bilateral-koklear-implant-kullanicisi-idilin-hikayesi\/"},"modified":"2024-02-16T16:15:31","modified_gmt":"2024-02-16T14:15:31","slug":"koklear-anomalisi-ince-sinir-olan-bilateral-koklear-implant-kullanicisi-idilin-hikayesi","status":"publish","type":"post","link":"https:\/\/blog.medel.com\/tr\/kullanici-hikayeleri\/koklear-anomalisi-ince-sinir-olan-bilateral-koklear-implant-kullanicisi-idilin-hikayesi\/","title":{"rendered":"Koklear Anomalisi ve \u0130nce Siniri Olan Bilateral Koklear \u0130mplant Kullan\u0131c\u0131s\u0131: \u0130dil\u2019in Hikayesi"},"content":{"rendered":"[vc_row][vc_column][vc_column_text]Merhaba Ben Sevin\u00e7,<\/p>\n
Eski\u015fehir\u2019de ya\u015f\u0131yoruz. K\u0131z\u0131m \u0130dil Bengisu, bizim tek \u00e7ocu\u011fumuz, \u015fu an 9 ya\u015f\u0131nda ve ilkokul 3. S\u0131n\u0131fta okuyor.<\/p>\n
1 \u015eubat 2011 y\u0131l\u0131nda d\u00fcnyaya gelen k\u0131z\u0131m \u0130dil Bengisu\u2019ya do\u011fumdan iki g\u00fcn sonra yeni do\u011fan i\u015fitme testi yap\u0131ld\u0131. Bu test sonucunda bir kula\u011f\u0131n\u0131n normal, di\u011ferinin ise testi ge\u00e7emedi\u011fi s\u00f6ylendi. Ancak bir i\u015fitme kayb\u0131 olma ihtimalinin \u00e7ok az oldu\u011fu s\u00f6ylendi ve biz de buna g\u00f6re tekrar bir test yapt\u0131rma ihtiyac\u0131 duymad\u0131k. \u0130dil Bengisu 10. Ay\u0131na gelene kadar \u00e7e\u015fitli sesler \u00e7\u0131kar\u0131yor ve normal i\u015fiten \u00e7ocuklar\u0131n geli\u015fim \u00f6zelliklerini g\u00f6steriyordu. Fakat daha sonra bab\u0131ldama d\u00f6nemi denilen d\u00f6neme ge\u00e7medi\u011fini fark ettik. Bunun \u00fczerine bir KKB doktoruna g\u00f6t\u00fcrd\u00fck ve genel bir muayene yap\u0131ld\u0131\u011f\u0131nda her \u015feyin normal oldu\u011fu s\u00f6ylendi. Ama bizim talebimiz do\u011frultusunda BERA testi yap\u0131lmas\u0131 sonucunda \u00e7ok ileri d\u00fczeyde i\u015fitme kayb\u0131 oldu\u011fu tespit edildi. O anda bizim i\u00e7in sanki d\u00fcnya durmu\u015ftu. Hi\u00e7bir \u015feyin anlam\u0131 kalmam\u0131\u015ft\u0131. Art\u0131k hi\u00e7bir \u015feyin eskisi gibi olmayaca\u011f\u0131n\u0131 anlam\u0131\u015ft\u0131k.<\/p>\n
11. aydan itibaren kulak arkas\u0131 i\u015fitme cihaz\u0131 tak\u0131ld\u0131 ve hemen rehabilitasyon e\u011fitimine ba\u015flad\u0131k. \u00c7ok ileri derece i\u015fitme kayb\u0131 olmas\u0131ndan dolay\u0131 kulak arkas\u0131 cihazlardan \u00e7ok faydalanamayaca\u011f\u0131 ve koklear implant denilen, ameliyatla tak\u0131lan bir cihaz oldu\u011funu \u00f6\u011frendik. Bu ameliyat\u0131 yapt\u0131rabilmek i\u00e7in ara\u015ft\u0131rma yapmaya ba\u015flad\u0131k ve Eski\u015fehir\u2019de yap\u0131ld\u0131\u011f\u0131n\u0131 \u00f6\u011frendik. O s\u0131ralar Bursa\u2019da oturuyorduk ve bu s\u00fcre\u00e7te s\u00fcrekli Eski\u015fehir\u2019e gidip gelmek zorundayd\u0131k. Bu bizi \u00e7ok yoruyor ve y\u0131prat\u0131yordu. Eski\u015fehir\u2019deki hastanede \u00e7e\u015fitli testler yap\u0131ld\u0131 ve k\u0131z\u0131m art\u0131k 15 ayl\u0131k olmu\u015ftu. Hastanede ameliyat olmay\u0131 bekledi\u011fimiz bir s\u0131rada doktorumuz geldi ve \u00e7ekilen MR sonucunda \u0130dil\u2019in kulaklar\u0131nda i\u015fitme siniri olmad\u0131\u011f\u0131n\u0131 bu nedenle koklear implant yerine beyin sap\u0131 implant\u0131 tak\u0131lmas\u0131 gerekti\u011fini s\u00f6yledi. Sonu\u00e7 olarak bu bizim i\u00e7in ikinci b\u00fcy\u00fck darbe oldu ve hastaneden \u00e7\u0131k\u0131p Bursa\u2019ya gidene kadar a\u011flad\u0131\u011f\u0131m\u0131 hat\u0131rl\u0131yorum. Ama biz bu i\u015fitme siniri olmad\u0131\u011f\u0131 s\u00f6z\u00fcne \u00e7ok bir anlam veremiyorduk. \u00c7\u00fcnk\u00fc \u0130dil alt\u0131 aydan beri e\u011fitim g\u00f6r\u00fcyordu ve \u00e7ok az da olsa \u00e7e\u015fitli seslere tepki vermeye ba\u015flam\u0131\u015ft\u0131. Bir anne olarak k\u0131z\u0131m\u0131 \u00e7ok iyi g\u00f6zlemlemi\u015ftim ve i\u015fitme siniri olmad\u0131\u011f\u0131 s\u00f6z\u00fcne inanmad\u0131m. Beyin sap\u0131 implant\u0131 yap\u0131lmas\u0131na gerek olmad\u0131\u011f\u0131 d\u00fc\u015f\u00fcncesiyle ba\u015fka hastane ve doktorlara m\u00fcracaat etmeye ba\u015flad\u0131k. Bu s\u00fcre\u00e7te Ankara ve \u0130zmir\u2019deki doktorlara gittik fakat zaman bizim i\u00e7in k\u0131sal\u0131yordu. \u00c7\u00fcnk\u00fc koklear implant ameliyat\u0131n\u0131n ne kadar erken bir s\u00fcrede yap\u0131l\u0131rsa faydas\u0131n\u0131n o kadar \u00e7ok oldu\u011funu \u00f6\u011frenmi\u015ftik. Sonu\u00e7ta \u0130zmir\u2019deki doktorumuz \u0130dil\u2019de i\u00e7 kulak anomalisinin fazla oldu\u011funu ve MR\u2019da \u00e7ok ince bir i\u015fitme siniri g\u00f6rd\u00fc\u011f\u00fcn\u00fc s\u00f6yledi. Bizim i\u00e7in b\u00fcy\u00fck bir \u00fcmit do\u011fmu\u015ftu ve hemen gerekli ba\u015fvurular\u0131 yaparak k\u0131z\u0131m 2 ya\u015f 3 ayl\u0131kken ilk ameliyat\u0131n\u0131 oldu. Doktorumuz bize i\u00e7 kulak anomalisi ve i\u015fitme siniri inceli\u011finden dolay\u0131 MED-EL marka i\u00e7 par\u00e7an\u0131n \u00e7ok uygun olaca\u011f\u0131n\u0131 s\u00f6ylemi\u015fti ve bizde bunu onaylad\u0131k. Ameliyattan bir s\u00fcre sonra d\u0131\u015f par\u00e7a da tak\u0131ld\u0131 ve bizim i\u00e7in olduk\u00e7a zor, yorucu bir e\u011fitim s\u00fcreci ba\u015flad\u0131. E\u011fitimlerimizi hi\u00e7 aksatmadan s\u00fcrd\u00fcrd\u00fck. Art\u0131k bizim i\u00e7in her yer bir e\u011fitim alan\u0131yd\u0131. Evde, sokakta, parkta, al\u0131\u015fveri\u015f merkezinde, tatilde\u2026 Her f\u0131rsat\u0131 ve her mek\u00e2n\u0131 e\u011fitim i\u00e7in de\u011ferlendiriyor ve \u00f6\u011fretmenlerimizden \u00f6\u011frendi\u011fimiz her \u015feyi uygulamaya \u00e7al\u0131\u015f\u0131yorduk. Odyolo\u011fumuzun ve \u00f6\u011fretmenlerimizin y\u00f6nlendirmeleri \u0130dil\u2019de b\u00fcy\u00fck ilerlemeler olmas\u0131n\u0131 sa\u011flad\u0131. Biz de asla y\u0131lmad\u0131k, vazge\u00e7medik. Anlamad\u0131 tekrar anlatt\u0131k, duymad\u0131 tekrar tekrar s\u00f6yledik. \u00c7\u00fcnk\u00fc \u0130dil bizim evlad\u0131m\u0131zd\u0131 ve ilerde biz olmad\u0131\u011f\u0131m\u0131zda hayat\u0131n\u0131 kimseye ba\u011fl\u0131 kalmadan s\u00fcrd\u00fcrmesini istiyorduk.<\/p>\n
![\"\"](\"https:\/\/blog.medel.com\/wp-content\/uploads\/2020\/08\/1-2-300x188.png\")
Bu s\u00fcre\u00e7te cihaz ayarlar\u0131m\u0131z\u0131 da d\u00fczenli olarak yapt\u0131rd\u0131k. Zaman zaman umudumuzun azald\u0131\u011f\u0131 ve isyan etti\u011fimiz anlar oldu ama biz hi\u00e7 vazge\u00e7mememiz gerekti\u011fi biliyorduk. Aile olarak birbirimize s\u0131ms\u0131k\u0131 kenetlendik ve bu zorlu yola devam ettik. Cihaz ayarlar\u0131 ve e\u011fitim s\u0131ras\u0131nda bizim i\u00e7in ikinci kula\u011fa da koklear implant cihaz\u0131 tak\u0131lmas\u0131n\u0131n \u00e7ok faydal\u0131 olaca\u011f\u0131 s\u00f6ylendi. Ama biz ba\u015fka tedavi y\u00f6ntemlerinin ortaya \u00e7\u0131kabilece\u011fi ve bunun gibi nedenlerle ikinci kulak ameliyat\u0131n\u0131 \u00e7ok d\u00fc\u015f\u00fcnm\u00fcyorduk. Ayr\u0131ca devletimiz de hen\u00fcz ikinci implant ameliyat\u0131n\u0131n masraflar\u0131n\u0131 kar\u015f\u0131lam\u0131yordu. Sonu\u00e7ta b\u00fcy\u00fck bir mali y\u00fck vard\u0131. Ama vakit kaybetmenin de \u0130dil i\u00e7in olumsuz sonu\u00e7lar do\u011furabilece\u011finin fark\u0131ndayd\u0131k.<\/p>\n
2. implant ameliyatlar\u0131n\u0131n devlet taraf\u0131ndan kar\u015f\u0131lanaca\u011f\u0131 karar\u0131n\u0131n al\u0131nmas\u0131ndan sonra yine \u0130zmir\u2019deki ilk ameliyat\u0131m\u0131z\u0131 yapan doktorumuza ba\u015fvurduk. Ancak \u015funu da belirteyim, ikinci kulak ameliyat\u0131n\u0131 olmadan \u00f6nce biz \u0130dil\u2019de s\u00fcrekli kulak arkas\u0131 cihaz kullanmaya devam ettik ve hi\u00e7 \u00e7\u0131karmad\u0131k. Bunun da b\u00fcy\u00fck faydas\u0131n\u0131 g\u00f6rd\u00fck. Sonu\u00e7 olarak ilk ameliyattan 6 y\u0131l sonra \u0130dil 8 ya\u015f\u0131nda iken ikinci koklear implant ameliyat\u0131n\u0131 da oldu. \u0130kinci ameliyat i\u00e7in de MED-EL marka cihaz\u0131 tercih ettik. \u00c7\u00fcnk\u00fc kulak anomalisi olan \u00e7ocuklar i\u00e7in en uygun i\u00e7 par\u00e7a MED-EL\u2019de bulunmaktayd\u0131. Ameliyat sonras\u0131nda d\u0131\u015f par\u00e7a tak\u0131ld\u0131 ve biz yine e\u011fitimlerimizi yo\u011funla\u015ft\u0131rd\u0131k ve cihaz ayarlar\u0131m\u0131z\u0131 aksatmadan yapt\u0131rd\u0131k. Odyolo\u011fumuzun ve \u00f6\u011fretmenlerimizin yard\u0131m\u0131yla bu s\u00fcrecin de \u00fcstesinden geldik. \u00c7ift tarafl\u0131 implant yapt\u0131rd\u0131\u011f\u0131m\u0131z i\u00e7in bir g\u00fcn bile pi\u015fman olmad\u0131k.<\/p>\n
![\"\"](\"https:\/\/blog.medel.com\/wp-content\/uploads\/2020\/08\/2-3-300x172.png\")
K\u0131z\u0131m \u015fimdi 9 ya\u015f\u0131nda ve 3. S\u0131n\u0131f \u00f6\u011frencisi. Bir devlet okulunda kayna\u015ft\u0131rma \u00f6\u011frencisi olarak e\u011fitimini s\u00fcrd\u00fcr\u00fcyor. Kalabal\u0131k ve g\u00fcr\u00fclt\u00fcl\u00fc ortamlarda duyma ve anlamada zorluk \u00e7ekiyor. Bundan dolay\u0131 okulda FM sistemi kullan\u0131yor ve en \u00f6n s\u0131rada oturuyor. Ancak sessiz ortamlarda ve yak\u0131n konu\u015fuldu\u011funda olduk\u00e7a iyi oldu\u011funu s\u00f6yleyebilirim. Bu nedenle evde genel olarak sessiz bir ortam sa\u011flamaya gayret g\u00f6steriyoruz. Birka\u00e7 ses d\u0131\u015f\u0131nda b\u00fct\u00fcn sesleri do\u011fru \u00e7\u0131karabiliyor. Ancak \u201cR ve S\u201d seslerini \u00e7\u0131karmakta ve \u201cL, N ve Y\u201d seslerini i\u015fitsel olarak ay\u0131rt etmekte g\u00fc\u00e7l\u00fck \u00e7ekiyor. Konu\u015furken kural\u0131na uygun c\u00fcmleler kurabiliyor. \u00d6rne\u011fin, \u2018\u2019Anne karn\u0131m \u00e7ok ac\u0131kt\u0131” veya “Tatilde kuzenlerimi g\u00f6recek miyim?”gibi. Ak\u0131c\u0131 ve anla\u015f\u0131l\u0131r bir \u015fekilde okuma yapabiliyor ve okudu\u011funu olduk\u00e7a iyi anlayabiliyor. Matematiksel becerileri de olduk\u00e7a iyi d\u00fczeyde.<\/p>\n
![\"\"](\"https:\/\/blog.medel.com\/wp-content\/uploads\/2020\/08\/3-1-225x300.png\")
\u0130dil fiziksel becerileri a\u00e7\u0131s\u0131ndan da her zaman ya\u015f\u0131tlar\u0131yla e\u015fit d\u00fczeyde oldu. 5 ya\u015f\u0131ndan beri y\u00fczme ve bale e\u011fitimi ald\u0131. Bunun d\u0131\u015f\u0131nda bir s\u00fcre piyano e\u011fitimi de ald\u0131. Rehabilitasyon e\u011fitimlerimiz yine devam ediyor. \u0130\u00e7 kulak anomalisi olan \u00e7ok ince bir sinirine sahip \u0130dil Bengisu\u2019daki bu geli\u015fimi b\u00fct\u00fcn herkes bir mucize olarak de\u011ferlendiriyor. Evet bizce de \u0130dil Bengisu bir mucize \u00e7ocuk ve bu olay bir mucize. Vazge\u00e7memenin, y\u0131lmaman\u0131n, d\u00fc\u015f\u00fcnce kalkmay\u0131 bilmenin ve pes etmemenin bir mucizesi. Do\u011fru insanlarla, doktorlarla, odyologlarla, \u00f6\u011fretmenlerle kar\u015f\u0131la\u015fman\u0131n bir mucizesi.<\/p>\n
Ayn\u0131 durumda olan ailelilere tavsiyem pes etmeyin, m\u00fccadele edin, g\u00fc\u00e7l\u00fc olun ve ba\u015far\u0131ya ula\u015f\u0131n.<\/p>\n
K\u0131z\u0131m ilk do\u011fdu\u011funda belki \u00e7ok \u015fanss\u0131z g\u00f6r\u00fcn\u00fcyordu ama sonradan ya\u015fad\u0131klar\u0131 hi\u00e7 de \u015fanss\u0131z olmad\u0131\u011f\u0131n\u0131 g\u00f6sterdi. \u0130n\u015fallah bu \u015fans\u0131n ve bu mucizen \u00f6m\u00fcr boyu devam eder.<\/p>\n
Bu s\u00fcre\u00e7te hayat\u0131m\u0131za giren g\u00fczel insanlara selam olsun. Hepinize sonsuz te\u015fekk\u00fcrler.<\/p>\n
Te\u015fekk\u00fcrler, Sevin\u00e7![\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"
[vc_row][vc_column][vc_column_text]Merhaba Ben Sevin\u00e7, Eski\u015fehir\u2019de ya\u015f\u0131yoruz. K\u0131z\u0131m \u0130dil Bengisu, bizim tek \u00e7ocu\u011fumuz, \u015fu an 9 ya\u015f\u0131nda ve ilkokul 3. S\u0131n\u0131fta okuyor. 1 \u015eubat 2011 y\u0131l\u0131nda d\u00fcnyaya gelen k\u0131z\u0131m \u0130dil Bengisu\u2019ya do\u011fumdan iki g\u00fcn sonra yeni do\u011fan i\u015fitme testi yap\u0131ld\u0131. Bu test sonucunda bir kula\u011f\u0131n\u0131n normal, di\u011ferinin ise testi ge\u00e7emedi\u011fi s\u00f6ylendi. Ancak bir i\u015fitme kayb\u0131 olma ihtimalinin […]<\/p>\n","protected":false},"author":8,"featured_media":71273,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3235],"tags":[],"class_list":["post-46041","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-kullanici-hikayeleri"],"yoast_head":"\n
Koklear Anomalisi ve \u0130nce Siniri Olan Bilateral Koklear \u0130mplant Kullan\u0131c\u0131s\u0131: \u0130dil\u2019in Hikayesi - The MED-EL Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blog.medel.com\/tr\/kullanici-hikayeleri\/koklear-anomalisi-ince-sinir-olan-bilateral-koklear-implant-kullanicisi-idilin-hikayesi\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Koklear Anomalisi ve \u0130nce Siniri Olan Bilateral Koklear \u0130mplant Kullan\u0131c\u0131s\u0131: \u0130dil\u2019in Hikayesi - The MED-EL Blog\" \/>\n<meta property=\"og:description\" content=\"[vc_row][vc_column][vc_column_text]Merhaba Ben Sevin\u00e7, Eski\u015fehir\u2019de ya\u015f\u0131yoruz. K\u0131z\u0131m \u0130dil Bengisu, bizim tek \u00e7ocu\u011fumuz, \u015fu an 9 ya\u015f\u0131nda ve ilkokul 3. S\u0131n\u0131fta okuyor. 1 \u015eubat 2011 y\u0131l\u0131nda d\u00fcnyaya gelen k\u0131z\u0131m \u0130dil Bengisu\u2019ya do\u011fumdan iki g\u00fcn sonra yeni do\u011fan i\u015fitme testi yap\u0131ld\u0131. Bu test sonucunda bir kula\u011f\u0131n\u0131n normal, di\u011ferinin ise testi ge\u00e7emedi\u011fi s\u00f6ylendi. 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